Response to [CLICK HERE to read or add to Kennington News]

Mirror

CARING FOR FAMILY IS DEPRESSING ME

May 22 2002

Dear Miriam

MY husband has a disabling condition, cerebellar ataxia, and both my children have inherited it.

None of them is considered ill enough for me to get a care allowance, yet I spend all my time caring for them. Most days, one or another is confined to bed.

I'm the only breadwinner and I feel so stressed trying to cope with everything. I had a nervous breakdown three years ago and still take tablets for depression.

Sometimes I really feel like giving up.

Nobody understands this curse our family is under. Can you explain the disorder more to me?

Miriam says

UNSTEADINESS when walking or moving is called ataxia and the main centre in the brain for preventing it is the cerebellum.

Damage to the cerebellum can therefore cause jerky, uncoordinated movement. In children, the damage is often the result of an acute viral infection or the inherited form, Friedreich's ataxia. Symptoms depend on the site of damage within the cerebellar system, although an awkward gait is common to most forms.

The typical ataxic gait is lurching and unsteady, like that of a drunk person, with feet widely placed. Damage to the cerebellum itself also causes slurred speech. Mental abilities are usually unaffected.

If your family are relying on you to meet all their practical needs, it's no wonder you're physically and emotionally worn out. I suspect you also feel isolated and this is where Ataxia UK could be your lifeline.

Not only do they raise money for research, they provide information, advice and practical support to sufferers and their families. Call their helpline on 020-7820 3900 or write to Ataxia UK, 10 Winchester House, Kennington Park, Cranmer Road, London SW9 6EJ.

[ Previous | Next ]